lupus?? calabassis(?) frog jumping contest

September 7, 2015 at 2:56 am (Uncategorized) (, , , , , , , , , )

froghurrayanimatethe following message came from someone who works with my new primary care doctor.

Hello Sandra, It looks like Tanya has already scheduled your appointment with Dr. Hanley? The ANA is the preliminary blood test that we use to check for a autoimmune disease such as Lupus. This is the reason that we referred you to Rheumatology. We will be more than happy to go over this in more detail when you come for your appointment with Dr. Hanley if you have any additional questions. THANKS and have a great day!

so now i could have lupus?? it might just be the rheumatoid arthritis.  well not likely but i like to think that may be it.  angie looked it up and really there is nothing new that i am not already experiencing.  that is the good news for me i think.

he has gone to bed and now we have our girl time.  we have certain shows we watch that he wouldn’t enjoy.  it is our time to just hang and talk smack frankly.  we also just have this time when we are together and no words are needed.  one of the best things is we have a similar sense of humor.  we know that we would never say these things to others as they might not understand that we could laugh at some of the things that make us cry laughing so hard.

angie asked me about my pain and what happens when i am unable to wake enough to get up.  she wants to understand, she came to our room more than once trying to stir me.  one time she read me an article about washing blue jeans.  her ex boyfriend would tell her he didn’t need to wash his jeans.  my own man has baffled me with this argument for not washing his jeans as often as i would think necessary.  he is otherwise a clean man and dresses very well when leaving the house.  i can remember basic facts of this article, i can remember her voice.  i love her voice! it is so expressive and usually has this hint of laughter just waiting to break out.

i tell her briefly what it is like to lay there and drift off when there is a part of me that screams at this body to respond.  get up….. get moving…. the day is passing and you are not participating.

me- you know what i really think about this new problem? it is much like the frog jumping contest they have in california each year.  you know they line these frogs up and one may start jumping straight ahead while the others may go off in other directions or just sit still and make no move.  well those frogs are my diseases or disorders.  one is congestive heart failure, another is kidney failure and so on with the liver failure, internal bleeding and now we add in lupus.  one of them is going to cross the line and kill me.  we were laughing and imitating those frogs!  then i said – you know i am so relieved to have you here and be able to laugh about this stuff.  as we are laughing she says “yeah, us and our demented sense of humor.”

well i would rather have a demented sense of humor than to be crying over this journey.  now we just have to decide which frog we are going to bet on.  anyone want to place a bet?

as the office worker said in her message, Thanks and have a great day!

14 Comments

  1. prenin said,

    Wow!

    Is there ANYTHING you can’t get??? 🙂

    I’ve heard of Lupus, but not in any detail other than as an autoimmune problem.

    In my case it was described as a problem caused by food and drink additives, I have heart problems if I consume aspartame, but apart from that I know little! 🙂

    I hope the tests come back negative hun – you have enough problems!!! 🙂

    Love and hugs to you all – you’re wonderful people!!! 🙂

    Prenin.

    • s blake callahan said,

      there seems to be no end to my talent for combining diseases:)

      the symptoms for lupus are much the same as what i have been living with for years. at this point it is just more the merrier. the test results were positive and that is why i have to go to yet another doctor. as i said though this seems new i am not concerned.

      sending you love and big warm hugs my friend

  2. jmgoyder said,

    What next? Unbelievable!

    • s blake callahan said,

      since the symptoms are just what i have been experiencing anyway it really isn’t of much concern. it really does seem too funny!

  3. Angie, also known as YS :) said,

    Spider bite! 😉 Love you…

    • s blake callahan said,

      i can’t believe i forgot that!! just remember how late it was. love you more than words can say

  4. Terry said,

    always have admired your attitude about life, the liver not the quitter

    • s blake callahan said,

      thanks terry, you have an indomitable spirit and i admire you also

      • Terry said,

        Thanks for letting me know dear friend

  5. Judy said,

    I was a little confused, Sandra. Do you have lupus, for sure? Maybe you only have a “rumor”tologist. It sounded like they were testing for it and you didn’t know. Messages like that could make you “hopping” mad – I hate when doctors throw things out like that without any kind of warning. (But since you like bunny budism, it makes sense with the hopping.)
    Anyway, I’ve toad you before – you are amazing and humor is something I love to hear about. The more I laugh (and I hope you and your sister and laughing up a storm) – the better life is. Thinking of you with love.

    • s blake callahan said,

      after i stop laughing i am going to clear this all up:) sending you love and hoping to see you soon

      • Judy said,

        Glad I gave you a laugh – I know you’ll keep “us in the loop” or perhaps “loopus!”

      • s blake callahan said,

        judy i just love your sense of humor!

  6. appletonavenue said,

    Oh dear! It’s so great to have people around you with a similar humor. Not everyone ‘gets’ a dark sense of humor, and with a serious illness a sense of humor is absolutely necessary to maintain. If you lose that, you’ve lost the battle. So glad you are still fighting.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: